{"id":3583,"date":"2017-10-04T11:38:49","date_gmt":"2017-10-04T10:38:49","guid":{"rendered":"http:\/\/www.thinkkidneys.nhs.uk\/ckd\/?page_id=3583"},"modified":"2024-02-22T09:44:28","modified_gmt":"2024-02-22T09:44:28","slug":"building-effective-partnerships-healthcare-professionals-patients","status":"publish","type":"page","link":"https:\/\/www.thinkkidneys.nhs.uk\/ckd\/building-effective-partnerships-healthcare-professionals-patients\/","title":{"rendered":"Building effective partnerships between healthcare professionals and patients"},"content":{"rendered":"\n<div style=\"background-color: #f8f9fa; padding: 15px; border-left: 3px solid #007bff; margin-bottom: 20px;\">\n    <h2 style=\"color: #007bff;\">Archived Content Notice<\/h2>\n    <p>You are currently accessing the Think Kidneys website. Please be aware that this site is an archive and contains content from the Think Kidneys project, which concluded in 2019. As a result, the information presented here is no longer being updated or maintained.<\/p>\n    <p>For the most current and relevant information, we encourage medical professionals to visit the <a href=\"https:\/\/www.ukkidney.org\" target=\"_blank\" rel=\"noopener noreferrer\">UK Kidney Association<\/a> for comprehensive resources and updates in the field. Patients and their families can find valuable, patient-centric information and support at <a href=\"https:\/\/www.kidneycareuk.org\" target=\"_blank\" rel=\"noopener noreferrer\">Kidney Care UK<\/a>.<\/p>\n    <p>We would also like to inform you that the Kidney Quality Improvement Partnership (KQIP) is now part of the UK Kidney Association. For more information, please visit <a href=\"https:\/\/ukkidney.org\/kquip\/homepage\" target=\"_blank\" rel=\"noopener noreferrer\">KQIP&#8217;s homepage<\/a> under the UK Kidney Association.<\/p>\n    <p>We thank you for your understanding and invite you to explore these recommended resources for up-to-date insights and guidance in kidney care and health.<\/p>\n<\/div>\n\n\n<p><span class=\"mc-toc-title\">The Transforming Participation in Chronic Kidney Disease (TP-CKD) Programme is working with renal units across England to look at ways in which health professionals and patients can work together to better enable the self-management of chronic kidney disease.<\/span><\/p>\n<p>With <a href=\"https:\/\/www.networks.nhs.uk\/networks\/news\/promises-to-give-people-control-of-their-care-are-being-broken\">new research<\/a> out just this month concluding that, despite two decades of policy promises, NHS services still do not give people adequate control of their own health and care, this work is timely.&nbsp; The TP-CKD programme is working towards closure in December 2017, and over the coming months will be drawing together the learning gained over the last three years in an evaluation report which will look at both qualitative and quantitative measures.&nbsp; The programme is working with the University of Hertfordshire to develop an evaluation model that will involve renal units, patients, healthcare professionals and members of the work-steams who have been involved in the programme to date.&nbsp; We hope that as many voices as possible will contribute to this part of the report through in-depth interviews, completion of questionnaires and focus groups.&nbsp; At the same time members of the measurement work-stream and the UK Renal Registry will develop a quantitative evaluation model and analyse the data that we have received from the surveys.<\/p>\n<p><span class=\"mc-toc-title\">2018 and beyond, the UK Renal Registry hopes to continue <\/span>to collect person centred measures and develop plans around how these can be embedded within patient care.<\/p>\n<h4>Using data to change practice<\/h4>\n<p>The TP-CKD programme first focused on the feasibility of measuring a patient&#8217;s skill, knowledge and confidence in managing their health (known as \u2018activation\u2019) alongside symptom burden, to gain a more holistic picture of a person\u2019s current control over their health.&nbsp; With the UK Renal Registry coordinating&nbsp;collection, the programme has now collected this data on over 3,700 kidney patients using paper questionnaires across 14 renal units.&nbsp; Results have been returned to the renal units as well as patients via <a href=\"https:\/\/www.patientview.org\/#\/\">patient view<\/a>.<\/p>\n<p>The programme\u2019s person centred care facilitator, Rachel Gair, is now working in partnership with the renal units involved to look at ways in which health care professionals with patients can use this data in practice.&nbsp; Examples so far from across the programme include staff enrolment onto a <a href=\"https:\/\/training.insigniahealth.com\/\">Patient Activation E-Learning programme<\/a>, using <a href=\"https:\/\/www.thinkkidneys.nhs.uk\/ckd\/wp-content\/uploads\/sites\/4\/2017\/09\/Peer-support-V4-TP-CKD-article-Aug-17.pdf\">peer support alongside patient activation<\/a>, as well as <a href=\"https:\/\/www.thinkkidneys.nhs.uk\/ckd\/blog\/building-effective-communication-heeley-dialysis-unit\/\">communication workshops<\/a> with staff.&nbsp; With upcoming TP-CKD workshops at Nottingham, Derby, Birmingham and Sheffield the programme is looking forward to facilitating more <a href=\"https:\/\/www.thinkkidneys.nhs.uk\/ckd\/wp-content\/uploads\/sites\/4\/2017\/05\/Interventions-Toolkit-FINAL-2.pdf\">interventions<\/a> to enable person centred approaches in care; and supporting units in interpreting their patient\u2019s data over the coming months.<\/p>","protected":false},"excerpt":{"rendered":"<p>Archived Content Notice You are currently accessing the Think Kidneys website. Please be aware that this site is an archive and contains content from the Think Kidneys project, which concluded in 2019. As a result, the information presented here is no longer being updated or maintained. For the most current and relevant information, we encourage medical professionals to visit the UK Kidney Association for comprehensive resources&#8230;<\/p>\n","protected":false},"author":130,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"jetpack_post_was_ever_published":false,"footnotes":""},"class_list":["post-3583","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Building effective partnerships between healthcare professionals and patients - Chronic Kidney Disease<\/title>\n<meta name=\"description\" content=\"Please be aware that this site is an archive and contains content from the Think Kidneys project, which concluded in 2019. 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