It was 2013, 10 years since the National Service Frameworks for kidney services had been published, and the environment was changing. We believed it was time for the kidney community to evaluate what we wanted to see our community focus on in the future. I therefore instigated a piece of work to create simple and clear ambitions that patients and professionals could use as a guide to what could be expected from their kidney service.<\/p>\n
The principle was one of co-production and not to tell anyone what or how to do something, but to point to the outcomes we jointly desired. The board of what was then the Kidney Alliance, representing most of the national patient and professional kidney charities, contributed to and supported the work. Together we created a set of 16 ambitions for excellent kidney care, from early identification through to conservative care. Dr Hugh Gallagher (kidney doctor at Epsom and St Helier hospital) had kindly agreed to co-author the report and we launched it in parliament with the support of Baroness Masham and Jane Ellison, the Health Minister at the time.<\/p>\n
Over the following years, we continued to meet as a Kidney Health Partnership Board, acting as a catalyst and touchpoint for work that resulted from the Kidney Health Delivering Excellence (KHDE) ambitions. The Board has retained national support and also that of the patient members who made a major contribution to its work and direction.<\/p>\n
Summary of the Kidney Health: Delivering Excellence ambitions<\/strong> Four years on and I am delighted that we are today launching the review of the impact of the report. To quote from the review \u201cWe have heard consistently that the messages of KHDE are as relevant now as in 2013\u201d.<\/p>\n Key Findings from the Kidney Health review<\/strong> 2. Cross community support for the kidney health work 3. More work is needed in certain areas 4. Good, sustained and continuing visibility with policymakers.<\/p>\n However KHDE has not been so visible at ground level with patients or staff. As it inspired some significant and beneficial projects we hope local Kidney Patient Associations, national patient charities and professional bodies will feel encouraged to increase its visibility throughout our community.<\/p>\n
\n1. Awareness & Identification – reduce cardiovascular risk
\n2. Prevent or delay disease progression
\n3. Inform self-management
\n4. Deliver person-centred care
\n5. Prevent and treat acute kidney injury
\n6. Preparation & choice
\n7, 8 & 9. Improve outcomes from transplantation, equity, increase numbers & live well with a transplant
\n10 & 11. Deliver better dialysis consistently & support patients to live well
\n12. Improve the care of children and young people
\n13. Access to & awareness of the multi-professional team
\n14. Treat and support people with rare diseases
\n15. Research \u2013 produce a national strategy
\n16. Conservative care \u2013 choice & multi-professional support<\/p>\n
\n1. The KHDE report had a significant and broad impact with policymakers, resulting in important projects:
\nTransforming participation in Chronic Kidney Disease
\nThe National Renal Research Strategy
\nThe Kidney Quality Improvement Partnership (KQUiP)
\nThe Think Kidneys Acute Kidney Injury programme
\nThe pan-London review of kidney care services across the city<\/p>\n
\n85% thought drawing up ambitions in this way was important
\nMajority thought the report had had an influence on national policy in kidney care
\nStrong opinion that the KHDE report had overall been an important force for change<\/p>\n
\nself-management
\nperson-centred care
\nincreasing transplantation<\/p>\n