{"id":5080,"date":"2018-10-03T17:20:56","date_gmt":"2018-10-03T16:20:56","guid":{"rendered":"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/?p=5080"},"modified":"2018-10-03T17:20:56","modified_gmt":"2018-10-03T16:20:56","slug":"include-patients-at-the-beginning","status":"publish","type":"post","link":"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/include-patients-at-the-beginning\/","title":{"rendered":"Include patients at the beginning"},"content":{"rendered":"<p>As part of <a href=\"https:\/\/fabnhsstuff.net\/\">FabChange70, led by the Academy of Fab Stuff<\/a>, the North West Fab ambassadors aimed to build a regional network of change agents, with no leader, no hierarchical power; a network that provides opportunity to share, learn and adapt from each other.<\/p>\n<p>I produced an invitation for the launch of our North West Fabulous Change Agent Network NWFabCAN:<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5081\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-1-221x300.jpg\" alt=\"\" width=\"221\" height=\"300\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-1-221x300.jpg 221w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-1-62x84.jpg 62w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-1.jpg 454w\" sizes=\"auto, (max-width: 221px) 100vw, 221px\" \/><\/p>\n<p>Feeling positive, I sent it out on Twitter and various social media platforms. The feedback I received was encouraging, however this was from healthcare professionals. The power of Twitter is to challenge others. This is exactly what I got:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-5082 size-full\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-2.jpg\" alt=\"\" width=\"497\" height=\"96\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-2.jpg 497w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-2-300x58.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-2-435x84.jpg 435w\" sizes=\"auto, (max-width: 497px) 100vw, 497px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-5083 size-full\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-3.jpg\" alt=\"\" width=\"502\" height=\"98\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-3.jpg 502w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-3-300x59.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-3-430x84.jpg 430w\" sizes=\"auto, (max-width: 502px) 100vw, 502px\" \/><\/p>\n<p>These responses gave me food for thought and overnight thinking with a shed tear. It was not my intent to upset anyone.<\/p>\n<p>I woke up in the morning and knew I needed to right this wrong.<\/p>\n<p>Firstly an open apology:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-5084 size-medium\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-4-300x176.jpg\" alt=\"\" width=\"300\" height=\"176\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-4-300x176.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-4-143x84.jpg 143w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/ll-blog-pic-4.jpg 564w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-5085 size-medium\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-5-300x109.jpg\" alt=\"\" width=\"300\" height=\"109\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-5-300x109.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-5-232x84.jpg 232w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-5.jpg 579w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Secondly I amended the invitation and re-posted on social media:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5086\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-6-235x300.jpg\" alt=\"\" width=\"235\" height=\"300\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-6-235x300.jpg 235w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-6-66x84.jpg 66w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-6.jpg 581w\" sizes=\"auto, (max-width: 235px) 100vw, 235px\" \/><\/p>\n<p>This made my day:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5087\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-7-300x61.jpg\" alt=\"\" width=\"300\" height=\"61\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-7-300x61.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-7.jpg 395w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>But this made me weep:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5088\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-8-300x55.jpg\" alt=\"\" width=\"300\" height=\"55\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-8-300x55.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-8.jpg 398w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Moral of the story:<\/p>\n<p>I learned from failure, the failure to involve patients at the launch of the network. I am proud of myself for having a growth mind set, learning from failure. Being a leader of improvement we are told to develop a growth mind set. Well I have first-hand experience that this is so right!<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5089\" src=\"http:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-9-300x164.jpg\" alt=\"\" width=\"300\" height=\"164\" srcset=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-9-300x164.jpg 300w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-9-154x84.jpg 154w, https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2018\/10\/LL-blog-pic-9.jpg 557w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>I understand why we need to involve patients in improvement, and I pledge to involve patients at the beginning of any improvement project.\u00a0 I will be advocating this with every conversation I have with healthcare professionals and when planning future healthcare events \u2013 where is your patient and please don\u2019t attend without a patient.<\/p>\n<p>My message to you reading this is \u2013 firstly, don\u2019t be afraid to admit you&#8217;re wrong and openly apologise to those you have failed, and secondly, now is the time to involve patients. Don\u2019t wait till you\u2019re ready, because you will never be ready. Learn together turning ME into WE.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>As part of FabChange70, led by the Academy of Fab Stuff, the North West Fab ambassadors aimed to build a regional network of change agents, with no leader, no hierarchical power; a network that provides opportunity to share, learn and adapt from each other. I produced an invitation for the launch of our North West Fabulous Change Agent Network NWFabCAN: &nbsp; Feeling positive, I sent it&#8230;<\/p>\n","protected":false},"author":130,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-5080","post","type-post","status-publish","format-standard","hentry","category-blog"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Include patients at the beginning - The Kidney Quality Improvement Partnership<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/include-patients-at-the-beginning\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Include patients at the beginning - The Kidney Quality Improvement Partnership\" \/>\n<meta property=\"og:description\" content=\"As part of FabChange70, led by the Academy of Fab Stuff, the North West Fab ambassadors aimed to build a regional network of change agents, with no leader, no hierarchical power; a network that provides opportunity to share, learn and adapt from each other. 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