{"id":5535,"date":"2019-02-28T16:38:23","date_gmt":"2019-02-28T16:38:23","guid":{"rendered":"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/?p=5535"},"modified":"2019-02-28T16:38:28","modified_gmt":"2019-02-28T16:38:28","slug":"samantha-a-supporter-of-daylife-and-home-therapies","status":"publish","type":"post","link":"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/samantha-a-supporter-of-daylife-and-home-therapies\/","title":{"rendered":"Samantha, a supporter of DAYLife and home therapies"},"content":{"rendered":"\n<div class=\"wp-block-image\"><figure class=\"alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/wp-content\/uploads\/sites\/5\/2019\/02\/Sammy.jpg\" alt=\"\" class=\"wp-image-5547\" width=\"162\" height=\"200\"\/><\/figure><\/div>\n\n\n\n<p>Samantha has been a dialysis\npatient for 15 years &#8211; half of her life &#8211; and with two failed transplants\nbehind her, she\u2019s been on home haemodialysis for the last five years. She\u2019s a fan.<\/p>\n\n\n\n<p>Samantha\u2019s renal\nfailure at the age of 16 was of unknown origin. CAPD was selected as the best treatment\noption for her in an attempt to help her maintain as normal a life as possible while\nshe was studying.<\/p>\n\n\n\n<p>Samantha says \u201cThis\nenabled me to carry on with my A level\u2019s, do dialysis at home, socialise with\nfriends and family, and meant minimal time spent at hospital or in the car\ntravelling to and from hospital.&nbsp; It even\nallowed me to go away for weekends or stay at friends\u2019 houses, allowing me to\nhave those normal teenage years\u201d. <\/p>\n\n\n\n<p>After three months this\nwasn\u2019t working sufficiently well so Samantha went on to APD for 11 hours a\nnight with a tea time exchange. It was, however, more difficult to maintain a\nnormal life. It took more planning and was extremely time consuming and\nlimiting, but Samantha is a very positive person, so she made it work for her and\ntried not to let it stop her doing anything.<\/p>\n\n\n\n<p>Sam explains \u201cDuring\nthe first year of my illness the staff at Shrewsbury hospital were so\nsupportive of both me and my family. This was a completely life changing\nsituation for me and my family and without the support of the CAPD nurses who\nhelped see us through this difficult time we would not have coped as well as we\ndid. The staff we came across were very knowledgeable and we had every\nconfidence in them. There was never a time where you couldn\u2019t speak to them\nabout something, no matter how small or ask a simple question. They almost\nbecame part of the family. At the age of 17 I had my first transplant from the\nlist and then in 2010 I received my Dad\u2019s kidney. Unfortunately for me neither\nof these lasted. &nbsp;When my Dad\u2019s kidney\nfailed in 2012, I went straight on to haemodialysis\u201d. <\/p>\n\n\n\n<p>She continues \u201cAs a\nneedle phobic I had always said that I would never have a fistula and never\nneedle myself. Luckily for me I had two amazing nurses on the haemodialysis\nunit who persisted in encouraging, counselling and patiently persuading me that\nhome haemodialysis was the way forward for me. Over the years I had grown to\nhave complete faith in them and I knew they had my best interest at heart. They\nslowly won me over step by step. At the time this was all happening a new\nmachine became available in Shrewsbury called NXstage. My nurse gave me all the\ninformation that was available, which included videos and literature. She spoke\nabout how it would help me live my normal, active lifestyle again and give me\nback some of the control of my treatment. She spoke about how my diet would be\nless restrictive and I would be able to drink more between sessions. This was\nthe deal breaker for me as I really struggled with my fluid restriction. So,\narmed with all this information and support I made the decision to put my trust\nand faith in NxStage.\u201d<\/p>\n\n\n\n<p>Despite a delay in\nher training for home haemodialysis, caused by staffing changes, Samantha was\nable to overcome her needle phobia, train on the machine and got home within a\nmonth. <\/p>\n\n\n\n<p>\u201cI now do dialysis five\ndays a week for two and half hours and have been doing this for the past five\nyears &#8211; I\u2019ve not looked back. &nbsp;Being on\nNxstage has enabled me to put my education into good use and I am now teaching three\ndays a week at a special needs secondary school. <\/p>\n\n\n\n<p>Nxstage has given me\nback control of my life. I almost feel like a normal person again.<\/p>\n\n\n\n<p>I plan my dialysis around\nmy life now, whereas before I was planning my life around my dialysis.&nbsp; If I want to go somewhere or do something, I\ncan with little thought. I can change when I do my dialysis to suit plans. I\ncan take it where ever I want to go. It allows me to drink more between\nsessions, so I never feel thirsty anymore. My diet has been relaxed and I can\nenjoy more foods. It has even allowed me to go on many holidays in the UK and\nabroad including going to Italy for a month.<\/p>\n\n\n\n<p>The home haemodialysis\nstaff are always there at the end of the phone if you are having any problems.\nThere is an out of hour\u2019s helpline, which I have rang many times and is always\nefficient. I am so glad that the staff helped me to choose home dialysis as it\nreally has made my life better. I am not saying that it\u2019s easy, it does take\ncourage, confidence and a lot of perseverance, especially the first few times\nyou do it at home. But it is so worthwhile &#8211; it has changed my life for the\nbetter\u201d. <\/p>\n\n\n\n<p>Our\nthanks to Samantha for her story. Samantha spoke very movingly about her\nexperience at the launch of <a href=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/daylife\/\">DAYLife, the national\nHome Therapies programme<\/a>. &nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Samantha has been a dialysis patient for 15 years &#8211; half of her life &#8211; and with two failed transplants behind her, she\u2019s been on home haemodialysis for the last five years. She\u2019s a fan. Samantha\u2019s renal failure at the age of 16 was of unknown origin. CAPD was selected as the best treatment option for her in an attempt to help her maintain as normal&#8230;<\/p>\n","protected":false},"author":130,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-5535","post","type-post","status-publish","format-standard","hentry","category-blog"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Samantha, a supporter of DAYLife and home therapies - The Kidney Quality Improvement Partnership<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/samantha-a-supporter-of-daylife-and-home-therapies\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Samantha, a supporter of DAYLife and home therapies - The Kidney Quality Improvement Partnership\" \/>\n<meta property=\"og:description\" content=\"Samantha has been a dialysis patient for 15 years &#8211; half of her life &#8211; and with two failed transplants behind her, she\u2019s been on home haemodialysis for the last five years. 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