{"id":6417,"date":"2019-10-16T13:38:24","date_gmt":"2019-10-16T12:38:24","guid":{"rendered":"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/?p=6417"},"modified":"2019-10-16T13:38:28","modified_gmt":"2019-10-16T12:38:28","slug":"transplant-first-what-are-the-common-themes-we-are-finding-from-working-with-regions","status":"publish","type":"post","link":"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/transplant-first-what-are-the-common-themes-we-are-finding-from-working-with-regions\/","title":{"rendered":"Transplant First: What are the common themes we are finding from working with regions?"},"content":{"rendered":"\n<p><em>Dr Kerry Tomlinson,\nTransplant First National Project Lead<\/em><\/p>\n\n\n\n<p>The Kidney Quality Improvement Partnership (KQuIP) has visited most regions in England and facilitated group discussions around barriers to access to best practice transplantation. In every region there are areas of good practice, but no region has transplant listing absolutely cracked and we found several themes which keep repeating themselves. I presented these at UK Kidney Week (UKKW) 2019 but, for those of you who couldn\u2019t attend, I have summarised here. I have focussed on why transplanting and referring units may be different.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Getting\ntogether<\/h3>\n\n\n\n<p>For many regions, the KQuIP events are a new and welcome opportunity to work together as a whole multi-disciplinary team (MDT). Hopefully if you are doing the Transplant First project you are continuing to find this. But tense relationships and hierarchy can creep in leaving things unsaid by some, and too much said by others. People often tell the KQuIP team something they haven\u2019t felt comfortable saying openly. For example, referring centres at times don\u2019t \u201cspeak up\u201d to the transplant unit and other MDT members do not challenge consultants. This hierarchical problem is well recognised in the NHS and not limited to transplantation but by being aware of it we can try and overcome it.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Interactions\nand pathways<\/h3>\n\n\n\n<p>During process mapping and discussion, it often becomes\napparent that change needs to start further \u201cupstream\u201d in low clearance\nservices. Although this may seem obvious, in practice, a lot of work is\nfocussed downstream.<\/p>\n\n\n\n<p>Often referring units are working with two transplant units\nwith different requirements. There may be two step processes e.g. satellite\nunits which cause delay. Handover points often go wrong and may have simple\nsolutions. For a lot of patients there can be a surprisingly large number of\nvisits (especially for donors) and complex pathways.<\/p>\n\n\n\n<p>Referring and transplanting unit nephrologists,\ncardiologists etc. are treated differently. Often transplanting units want to\nrepeat assessments with their own clinicians.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Assessment\nGuidelines<\/h3>\n\n\n\n<p>There were very few regions or referring\/transplanting unit\npartnerships with agreed assessment guidelines. Sometimes transplant units had\nnon-evidence based, rigid requirements e.g. CPET testing, BMI cut offs, need\nfor a dental check-up, which were described as contributing to significant\ndelays. Shifting goalposts and personal opinions mean that referring units are\nsometimes left guessing what is needed and frustrated when they are asked for\nextra tests after the patient is seen at the transplant unit. Equally, transplanting\nunits are frustrated when referring units give incomplete information. Much of\nthis could be avoided if pragmatic guidelines were agreed.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Common\nbarrier themes: Clinical<\/h3>\n\n\n\n<ul class=\"wp-block-list\"><li>Access to cardiology (tests or clinicians) was\nthe most commonly cited clinical barrier. Often units perceived this as a\nresource issue, however this could largely &nbsp;be overcome with pathway changes. For example,\nstarting assessments early enough, having clear requirements and uniform\npathways, or not requiring test which are hard to access and don\u2019t have good\nevidence. <\/li><\/ul>\n\n\n\n<ul class=\"wp-block-list\"><li>The next main area of concern was obtaining specialty opinions and the long delay it typically caused. Although there is no clear answer, I have started writing to specialties in a very different way pointing out: <ul><li>Kidney failure and dialysis has a poor outcome, and this is improved by transplant<\/li><li>Audit has shown one of our main avoidable delays to transplant listing is specialty opinions<\/li><li>Please can a consultant reply directly to me and answer some specific questions (life expectancy, affect of condition on risk of operation and immunosuppression, effect of transplantation surgery and immunosuppression on their condition)<\/li><\/ul><\/li><\/ul>\n\n\n\n<p>I have no numerical data, but my\nimpression is that the replies are coming sooner and are more useful than\npreviously.<\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Decision making, particularly when there is\nbidirectional flow of information can also cause significant delays. While the use\nof transplant listing MDT meetings can help with this there was often a feeling\nthat they could also slow down the process or add complexity if used unwisely.<\/li><\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">Common\nbarrier themes: Resources<\/h3>\n\n\n\n<p>Finance and commissioning are frequently cited as a barrier.\nThe most commonly mentioned issues are access to specialist transplant nurses,\nor nursing time dedicated to transplant listing and donor workup. Time in clinics\nor clinic capacity can also be problematic. Although anecdotal, some units have\nfound that going through the Transplant First and <a href=\"https:\/\/gettingitrightfirsttime.co.uk\/medical-specialties\/renal-medicine\/\">GIRFT<\/a>\nprocesses has given them the evidence they need to increase resources. <\/p>\n\n\n\n<p>Despite all the above there are referring units which are listing patients for transplantation earlier than their transplanting units. Common themes in these units are:<\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Having a clinical champion for transplant access<\/li><li>Close surgical interaction and clear pathways<\/li><li>Direct access to cardiology tests<\/li><li>Undertaking a QI project in the area<\/li><li>Systematic review of transplant status at\nvarious points in the patient pathway<\/li><li>Continual eye on performance<\/li><li>Specialist nurses<\/li><\/ul>\n\n\n\n<p>I expect a lot of this will be familiar to anyone working in\nlow clearance and transplantation pathways. However, for any of the common\nbarriers there is at least one unit or region that is doing it more effectively\nor working on ideas. Hopefully you are finding solutions and we in the KQuIP\nteam look forward to learning from you and sharing your ideas.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dr Kerry Tomlinson, Transplant First National Project Lead The Kidney Quality Improvement Partnership (KQuIP) has visited most regions in England and facilitated group discussions around barriers to access to best practice transplantation. In every region there are areas of good practice, but no region has transplant listing absolutely cracked and we found several themes which keep repeating themselves. I presented these at UK Kidney Week (UKKW)&#8230;<\/p>\n","protected":false},"author":130,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-6417","post","type-post","status-publish","format-standard","hentry","category-blog"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Transplant First: What are the common themes we are finding from working with regions? - The Kidney Quality Improvement Partnership<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.thinkkidneys.nhs.uk\/kquip\/blog\/transplant-first-what-are-the-common-themes-we-are-finding-from-working-with-regions\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Transplant First: What are the common themes we are finding from working with regions? - The Kidney Quality Improvement Partnership\" \/>\n<meta property=\"og:description\" content=\"Dr Kerry Tomlinson, Transplant First National Project Lead The Kidney Quality Improvement Partnership (KQuIP) has visited most regions in England and facilitated group discussions around barriers to access to best practice transplantation. In every region there are areas of good practice, but no region has transplant listing absolutely cracked and we found several themes which keep repeating themselves. 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