Samantha, a supporter of DAYLife and home therapies

Samantha has been a dialysis patient for 15 years – half of her life – and with two failed transplants behind her, she’s been on home haemodialysis for the last five years. She’s a fan. Samantha’s renal failure at the age of 16 was of unknown origin. CAPD was selected as the best treatment option for her in an attempt to help her maintain as normal…

Read More

2018 National report of kidney patient experience in the UK

The national report of kidney patient experience in the UK has been published today highlighting that transport (to and from clinics for dialysis); needling (how often the renal team insert dialysis needles with as little pain as possible) and shared decision making about care remain the areas where patients still feel most improvement is needed. The Kidney Patient Reported Experience Measure (Kidney PREM) is a major initiative which aims to put kidney…

Read More

Include patients at the beginning

As part of FabChange70, led by the Academy of Fab Stuff, the North West Fab ambassadors aimed to build a regional network of change agents, with no leader, no hierarchical power; a network that provides opportunity to share, learn and adapt from each other. I produced an invitation for the launch of our North West Fabulous Change Agent Network NWFabCAN:   Feeling positive, I sent it…

Read More

Join the KQuIP faculty

KQuIP are looking for people with an interest or expertise in improving care for people with kidney disease through facilitation, project management, quality improvement or leadership. You will become part of a network of experts that can mentor, guide and support the renal community in their work to increase the quality of care for patients and the public. Applications to the KQuIP faculty are not limited…

Read More