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As a pioneering and innovative programme, we are ‘learning as we go’ on many aspects of the programme. As we move into Phase 2, with units looking more closely at how they can use their data to instigate change, the return of results and how results are presented is becoming more and more important.
Our Aims:
A number of units have informed us of how difficult the results spreadsheet is to decipher and use in clinics and consultations. In response to this, we are now working with our statistician and systems team at the registry, to present this data to you in a more visual, meaningful way. We are also working towards the routine return of all individual patient results in pdf file format, so that you can use these with or without Patient View, when talking with your patients.
Your unit will then be able to see the spreadsheet to look at overall trends from your returns, including analysing differences by modality, gender and age; and look at individual patient information within consultations using the pdf files.
We hope this will make it easier to read and respond to the valuable data that we have all worked so hard to collect. The UK Renal Registry has never before collected this kind of data from renal units, and we are still working out the processes and systems involved in ensuring its reliable return.