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The Transforming Participation in Chronic Kidney Disease Programme has now entered Phase 2; where both cohorts 1 and 2 will work together, sharing experiences from their participation in the programme and learning from and building on the excellent work that has taken place so far.
During Phase 1, the programme explored the feasibility of collecting Patient Activation and Patient Reported Outcome measures amongst renal patients. Collection of this important data will continue in Phase 2, but the programme will now also move beyond this, to think about how to expand collection and use the data to benefit patients. The focus will be on three main areas:
- Spread: Many units from within cohort 1 have successfully trialled the collection of Patient Activation and Patient Reported Outcome measures within one patient group. This next stage will look at ways to spread this collection to include patients from across the renal care pathway – from low clearance, right through to dialysis and transplant patient populations.
- Embed: Units will begin to think about how this data collection can become routine practice within their clinics. What are the challenges around re—surveying patients, and how can they embed the collection of the survey into their staff practices?
- Intervention: Using the interventions toolkit developed by clinicians and patients from the Intervention Work Stream, units are now beginning to think about how they can best respond to the data they are collecting, and use it to implement changes in conversations and behaviours to benefit patients.