TP-CKD Shared Challenges

By sharing challenges encountered across the project by the patients, clinicians or the programme team, we hope to more easily work together to overcome them, and learn through this process.  Has your unit overcome a challenge during your involvement in the TP-CKD project?  If so, do let us know, and we will share it in the next bulletin. Here are a few of the challenges we are working to overcome at the moment:

  • The hope that surveys would be brought with patients to consultations has not always gone to plan at Nottingham’s Renal Unit. Patients tended to hand them straight into reception rather than keep hold of them to discuss with their clinicians. This was felt to be a missed opportunity.
  • Processes are not yet embedded to get results back to patients and renal units routinely – this is something we are working hard to resolve with the data team at the UKRR.
  • Some units raised concern that as they have been unable to return data to patients in a routine manner and discuss results within consultations they have been reluctant to re-survey patients.
  • 7% of the returned CS-PAM surveys from Cohort 2 so far have not included which renal centre the clinician is from, meaning we are unable to feedback these results to the relevant centre.
  • Some Your Health Surveys are being returned with missing NHS numbers, which means they cannot be processed through the system at the Renal Registry. Time is then spent chasing up units for this information before results can be shared with patients and clinicians. Please can special attention be paid to this to try and reduce delays.