About PREM

Kidney Patient Reported Experience Measure (PREM)

The Kidney Patient Reported Experience Measure (PREM) is a national annual survey of kidney patients.

Background to the Kidney PREM

The Kidney PREM came about through the Transforming Participation in Chronic Kidney Disease Programme, and was one of a series of measures developed by the Measurement Work-stream with the aim to routinely collect patient reported outcomes and experience measures from people living with chronic kidney disease.

The TP-CKD Programme was initially working with 10 renal units, however the Kidney PREM became something bigger when the renal unit clinical directors agreed at their annual forum in 2016, that a national PREM survey would be of value, and that many would be keen to participate.

Of the 52 adult renal units in England, 39 units (75%) took part in the 2016 pilot PREM.  Over 8,000 people responded, completing the survey.  This is a remarkable result for a pilot project of this scale.

Since the PREM 2016, the survey has gone through a rigorous validation process, in partnership with the University of Hertfordshire and renal units across Wales.

The PREM survey is managed by the UK Renal Registry in Partnership with Kidney Care UK.

2018 is the third year of the survey. Results from 2016 and 2017 can be found in the published annual Kidney PREM reports.   Kidney patients being cared for in NHS renal units in the United Kingdom can take part.  It is available online in four languages – English, Welsh, Urdu and Gujarati.

The aim of the PREM survey is to

  • Help renal unit teams understand how patients feel about their experience of care
  • Show where improvement can be made, and
  • Give us a national picture of people’s experience of care

If you need any more information about PREM please contact catherine.stannard@renalregistry.nhs.uk