2018 National report of kidney patient experience in the UK

The national report of kidney patient experience in the UK has been published today highlighting that transport (to and from clinics for dialysis); needling (how often the renal team insert dialysis needles with as little pain as possible) and shared decision making about care remain the areas where patients still feel most improvement is needed. The Kidney Patient Reported Experience Measure (Kidney PREM) is a major…

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Final Report Published for Transforming Participation in Chronic Kidney Disease

The final report of the Transforming Participation in Chronic Kidney Disease (TP-CKD) programme is now published. The programme was developed and delivered by clinicians, patients, carers and improvement experts and was a collaboration between the Renal Association and NHS England. The aim was to investigate how healthcare can support and improve people’s knowledge, skills and confidence in managing their own health and illness. We also wanted…

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Putting data into action – Kidney Patient Reported Experience Measure 2017

Did you or your kidney unit take part in the 2017 Kidney Patient Reported Experience Measure (PREM)? Whether you are a patient or member of staff, your unit’s patient experience data is accessible from the Registry on request. Simply download and complete the application form and return it by email to ukrr-research@renalregistry.nhs.uk.  If you would like to have an informal chat to us prior to submitting your form, please…

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TP-CKD at UK Kidney Week 2018

The Registry quality improvement team presented TP-CKD at sessions throughout UK Kidney Week this year. You can view the abstracts that were presented by clicking on the links below: Associations Between Patient Activation, Patient Characteristics and Patient Outcomes Implementing a national adult Patient Reported Experience Measure (PREM) for kidney patients Routine Collection of Patient Reported Outcome Measures and Renal Unit Cultural Characteristics There were also several…

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