Final Report Published for Transforming Participation in Chronic Kidney Disease

The final report of the Transforming Participation in Chronic Kidney Disease (TP-CKD) programme is now published.

The programme was developed and delivered by clinicians, patients, carers and improvement experts and was a collaboration between the Renal Association and NHS England. The aim was to investigate how healthcare can support and improve people’s knowledge, skills and confidence in managing their own health and illness. We also wanted to see if it was possible to collect information routinely from patients about their experience of care.

The report does not give the complete solution, but it is a step on that journey. It has examined the feasibility of measuring an individual’s knowledge, skills and confidence using a recognised system that is transferable and comparable.

The report has identified the characteristics of a team that allow tools and ways of working to be introduced into routine clinical practice. It has posed the challenge of how to change the engagement of individuals and teams in delivering better health. Its biggest success though is, perhaps, in showing how service users and service deliverers can work together for a better solution.

While the TP-CKD programme has ended, work continues with TP2. This phase builds on the success and learning from TP-CKD and moves towards improvement and changing practice. TP2 focusses on how introducing interventions into practice can make a difference in improving the knowledge, skills and confidence of people living with CKD. You can find out more here.