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2018 National report of kidney patient experience in the UK

The national report of kidney patient experience in the UK has been published today highlighting that transport (to and from clinics for dialysis); needling (how often the renal team insert dialysis needles with as little pain as possible) and shared decision making about care remain the areas where patients still feel most improvement is needed. The Kidney Patient Reported Experience Measure (Kidney PREM) is a major…

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Final Report Published for Transforming Participation in Chronic Kidney Disease

The final report of the Transforming Participation in Chronic Kidney Disease (TP-CKD) programme is now published. The programme was developed and delivered by clinicians, patients, carers and improvement experts and was a collaboration between the Renal Association and NHS England. The aim was to investigate how healthcare can support and improve people’s knowledge, skills and confidence in managing their own health and illness. We also wanted…

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Until it Happens to You

When it happens to you, your world falls apart. Maybe not completely, maybe only a little bit. But this is all there is now. It’s hard to focus on anything else. Nothing matters…. except surviving. I’m sitting in front of a lovely man who’s giving me loads of information and telling me how it’s going to be. How I’m going to be. A nurse leans on…

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Putting data into action – Kidney Patient Reported Experience Measure 2017

Did you or your kidney unit take part in the 2017 Kidney Patient Reported Experience Measure (PREM)? Whether you are a patient or member of staff, your unit’s patient experience data is accessible from the Registry on request. Simply download and complete the application form and return it by email to ukrr-research@renalregistry.nhs.uk.  If you would like to have an informal chat to us prior to submitting your form, please…

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