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Until it Happens to You

When it happens to you, your world falls apart. Maybe not completely, maybe only a little bit. But this is all there is now. It’s hard to focus on anything else. Nothing matters…. except surviving. I’m sitting in front of a lovely man who’s giving me loads of information and telling me how it’s going to be. How I’m going to be. A nurse leans on…

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Putting data into action – Kidney Patient Reported Experience Measure 2017

Did you or your kidney unit take part in the 2017 Kidney Patient Reported Experience Measure (PREM)? Whether you are a patient or member of staff, your unit’s patient experience data is accessible from the Registry on request. Simply download and complete the application form and return it by email to  If you would like to have an informal chat to us prior to submitting your form, please…

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Putting data into action

By Ron Cullen, Chief Executive, Renal Association The UK Renal Registry’s mission statement, “Putting Data into Action” aims to improve patient care by national audit and supporting research, innovation and quality improvement (QI).  As the quality of the Registry’s data has improved, so has the desire to make a positive difference to kidney patients with the data we collect, and to ensure “quality assurance and quality…

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TP-CKD at UK Kidney Week 2018

The Registry quality improvement team presented TP-CKD at sessions throughout UK Kidney Week this year. You can view the abstracts that were presented by clicking on the links below: Associations Between Patient Activation, Patient Characteristics and Patient Outcomes Implementing a national adult Patient Reported Experience Measure (PREM) for kidney patients Routine Collection of Patient Reported Outcome Measures and Renal Unit Cultural Characteristics There were also several…

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