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Transforming Participation: A Peer Assist event

The Transforming Participation in Chronic Kidney Disease (TP-CKD) programme is about people with chronic kidney disease (CKD) working closely with their renal team and others so that together they can learn how best to live life to the full by developing their knowledge, skills and confidence. Since 2018, the Transforming Participation 2 programme has developed partnerships with four renal units who are working to transform the way…

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The renal community – putting the personalised care agenda into practice

In the document, Universal Personalised Care: Implementing the Comprehensive Model, released in January of this year, NHS England set out how it plans to deliver personalised care across the NHS over the next ten years.  As the document states: “As well as being morally the right thing to do, a growing body of evidence shows that better outcomes and experiences, as well as reduced health inequalities,…

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2018 National report of kidney patient experience in the UK

The national report of kidney patient experience in the UK has been published today highlighting that transport (to and from clinics for dialysis); needling (how often the renal team insert dialysis needles with as little pain as possible) and shared decision making about care remain the areas where patients still feel most improvement is needed. The Kidney Patient Reported Experience Measure (Kidney PREM) is a major…

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Final Report Published for Transforming Participation in Chronic Kidney Disease

The final report of the Transforming Participation in Chronic Kidney Disease (TP-CKD) programme is now published. The programme was developed and delivered by clinicians, patients, carers and improvement experts and was a collaboration between the Renal Association and NHS England. The aim was to investigate how healthcare can support and improve people’s knowledge, skills and confidence in managing their own health and illness. We also wanted…

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Until it Happens to You

When it happens to you, your world falls apart. Maybe not completely, maybe only a little bit. But this is all there is now. It’s hard to focus on anything else. Nothing matters…. except surviving. I’m sitting in front of a lovely man who’s giving me loads of information and telling me how it’s going to be. How I’m going to be. A nurse leans on…

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