The Patient Reported Experience Measure has been extended

The online PREM survey is now open until 31st August 2017 The Patient Reported Experience Measure (PREM), an annual survey open to all adult renal patients in England and Wales, has been extended this year.  Patients wishing to fill out the survey online can now do so until the 31st August 2017. We hope this will enable greater numbers of patients to take part, making the…

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Learning Through Listening

By Catherine Stannard, Programme Support Officer at the UK Renal Registry When I began my new role as Programme Support Officer for Transforming Participation in CKD at the end of February 2017, I had very little knowledge, or experience of Chronic Kidney Disease.  From the offset, my priority was to try and understand what living with Chronic Kidney Disease meant to people – to those living…

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The TP-CKD board welcomes two new members

The Transforming Participation in Chronic Kidney Disease Programme are delighted to welcome two new patient representatives to the programme board – Peter Naish and Shaila Hussain.  Here, in their own words, they describe a bit about their background, their experience of Chronic Kidney Disease, and their reasons behind getting involved in the programme. Follow the link on their names to read Peter and Shaila’s stories.

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TP-CKD December 2016 Update

The latest Transforming Participation in CKD update for December 2016 is now available here. Rachel Gair, Person Centred Care Facilitator and Sarah Evans, Programme Support Officer have produced this month’s update.

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